Welcome and thank you for taking the time to find my blog.
I have tried to write about my experiences of living with having a grade 4 Glioblastoma Multiforme (GBM) brain tumour. The counter in the top right hand corner on the site shows how long I have been fighting this disease since my diagnosis. As you can imagine a lot has happened along the way. One of the problems with having a brain tumour is it affects memory and brain power, so this may not be the most comprehensive of records.
Another thing is some of the other treatments I’ve had (no spoilers) have a serious impact on motivation, so whilst I’ve wanted to do a blog for some time it has taken a long time to get to this stage. Sorry but you will have to bear with me as this means there will be a bit of jumping around on the blog. I have tried to go back and start from the beginning to show everything that I have been through, well the bits that I can remember or read from my mad scribbling notes I made at the time. The problem with doing this means there is then a delay writing the current stuff and then I forget the current bits I want to write. Confused yet?? Welcome to my world!
So, depending on the type of person you are, here are my tips on how to attack this blog:
If you like structure and want the complete story in a chronological order start with the posts at the bottom of the blog and work your way up to the top for the current posts.
- If you prefer to see the posts that may be relevant to you it would be a good idea to go over to the fighting rounds page, consider this an index of what has happened, you can then jump to which ever round interests you in the categories section, if there are any.
- Finally, if you don’t want to know the whole story and would prefer to just go with the flow, just do your own thing, look through the categories, see what new posts crop up, look at as much or as little takes your fancy, this would be me!
Other than just going through my treatment, I am planning on writing posts on my views and just general rants on things that I’ve learnt along the way, these will probably pop up at random and will vary depending on how I feel at the time. Warning, I have already noticed that some of the early things I have said I would contradict now, so I guess the blog is a constant evolving beast and as I change and evolve so will it.
To try and keep the blog interesting I am going to invite some guest writers to create posts about their experiences knowing someone with a brain tumour. These ones are likely to be much better written than mine and hopefully will provide a different perspective on things.
So why am I bothering with a blog if I’m not a writer? I decided that I wanted to do it for a number of reasons:
- Keep friends and family informed of what has been happening, rather than sending individual emails, text messages or phone calls……. Yes I am lazy and always looking for a shortcut or to streamline a process.
- Provide information to others who are going through / know someone going through a similar thing. This diagnosis has definitely caused a roller coaster for my life and if I can help others in anyway prepare for going through a similar experience it can only be a good thing.
- On a personal note it has been helpful to remember the original symptoms I felt and what to expect when going through treatments again.
Anyway, whatever reason you are here, thank you. Please get involved, subscribe, add comments to the posts or contact me using the details on the contact page, confusingly titled ‘hit me up’. You’ll find as you go along I often make bad attempts at brain humour. It would be great to hear from you and find out what brought you to this blog, what you would like to get from it and how I could improve it.
I am not a professional blogger and this is my first attempt at doing one but hopefully it will be of some use to someone, even if it reminds people that we are not going through this alone.
Thanks again and enjoy.